Friday 28 May 2010 - Treatment Day 148

I told mum yesterday that I wanted to go to school again today but I was a bit tired and I woke up quite late so I didn't feel like going after all.

Dad picked me up in the evening.

QOTD: "If mum sells me to another parent, they might not know I'm sick. Then they won't take me to hospital."

Thursday 27 May 2010 - Treatment Day 147

Mum went to Singapore today. I've been to Singapore a few times too. That's me in November 2007 when I was 3 years old. I was at the rooftop of Singapore's Vivocity shopping mall. We took the cable car from there to Sentosa island which you can see in the background. Now there is a new Universal Studios theme park there which just opened in March this year. I can't wait to get better, then I can go.

I felt like going to school again, so I went to school with Omar and Emma.

Tomorrow is a public holiday. Dad isn't working tomorrow, so he came to grandma's to pick me up after work. But I didn't want to go home because I wanted to play with Omar.

QOTD: "Charlie and The Chocolate Factory is a really great story."

Wednesday 26 May 2010 - Treatment Day 146

I went to school today. Tok Mummy gave me some new Oxford Reading Tree books - Kipper and The Giant, In The Garden (Stage 6) and Red Planet (Stage 7). I chose them myself.

Later, I played my favourite game Cooking Mama on my DS Lite today. You can cook all sorts of yummy Japanese dishes in it.

I am sleeping over at grandma's house tonight. Mum is going to Singapore tomorrow. Mum thought it would be nice for me to go on holiday too as I am on a break at the moment before I start my 6-month 'Protocol III' chemo regimen on 2 June. Dr Lin said it was fine if mum wanted to take me to Singapore. But dad said it was too risky because Singapore is too crowded. And he can't come because he has to work.

Aunty Vanessa, Sarah's mum, said that we should go on holiday if we can. She said one of the most important lessons she learnt after Sarah got leukaemia is to make the most of each day and to enjoy every moment of it.

Mum is worried I won't be given my meds properly if she isn't around to supervise. She cut up and prepared all the tablets that I need to take for the next 7 days. But she'll be back on Saturday.

Under Protocol III, I will start on a new set of drugs, as well as Vincristine which I have had before.

QOTD: "I love mum so much, I don't want her to die or burn. But dad always lies, he will be on fire."

Tuesday 25 May 2010 - Treatment Day 145

Mum worked on her computer again today while I played.

I got bored again so mum called for the home tutor to come in the afternoon to teach me some Bahasa and Maths.

Later in the evening, aunty Lih Yi (mum's friend) popped by with some yummy cakes for me from Etoile, and a tube of Ezerra cream from aunty Pauline for my rashes. It's an anti-eczema cream and does not contain parabens, which could cause cancer.

I had to start taking B Complex and Neurobion (which is also from the B Complex family) today because I will be having the Vincristine chemo drug next week. Vincristine caused some nerve damage in my legs the last time I took it. I couldn't walk and I had to crawl up the stairs at the time. My neurologist Dr Sofiah said taking B Complex and Neurobion will help to prevent it this time.

QOTD: "You're the greatest treasure of all, mummy."

Monday 24 May 2010 - Treatment Day 144

I didn't do much today, I just played at home while mum worked on a story about something called subsidies.

My cousin Omar came over after school. We ate some organic gingerbread cookies and played on our PSPs.

I took some more 6-MP to make up for the ones I'd thrown up while I was in hospital last week.

QOTD: "Why is Beyonce singing about a beautiful nightmare? Nightmares are bad dreams."

Sunday 23 May 2010 - Treatment Day 143

I was tired again today, so I just mooched around at home. I did a bit of arts and craft with my new fairy diary.

Mum gave me some Bactrim tablets and 6-MP chemo tablets to make up for the ones I had missed or thrown up while in hospital.

QOTD: "Justin Bieber is a boy? Then why does he sound like a girl?"

Saturday 22 May 2010 - Treatment Day 142

I finally got discharged today. My MTX levels were still on the high side at 0.53 as of 8am, so Dr Lin gave me 2 folinic acid tablets to take at home. I had to take them at 6pm and midnight.

Aunty Debbie (mum's friend) came to visit me in hospital before I went home. She bought me some new books from my favourite series Dr Seuss, some orange juice and other groceries. I really love Dr Seuss books and I read my new ones straightaway. They were A Whale of a Tale!, Inside Your Outside! and Oh the Things You Can Do That Are Good For You! Mum took a video of me reading one (you can see it at the bottom of this post) but it's a bit short and it's lopsided.

I was still vomiting a lot today though and I nearly vomited all over poor aunty Debbie.

Tok and grandma visited me too, grandma made me some of my favourite rice and fish. I vomited after lunch though, and after I'd taken my 6MP chemo tablet, so mum wasn't sure if I'd absorbed it by then.

Both mum and dad were working today, so tok and grandma helped us pack.

I was so tired by the time I got home, I fell asleep, and mum had to wake me up to take the folinic acid. I really didn't want to but she said I had to.

QOTD: "Are they stopping the water (in the drip)? I can't feel anything (going in my body)."

Weight: 17kg (-2kg)