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Monday, April 18, 2011

Monday 18 April 2011 - Treatment Day 472


I had chemo today. It's the second dose of Vincristine after the first dose last Monday. Mum was working but she had to take me to SDMC. Dad couldn't take leave and grandma had to go to the Indonesian embassy again for her helper kakak Mila's visa.

When we were halfway there, mum remembered she forgot to put Emla cream on my port before leaving the house. When she said that, I cried because then it would hurt when the nurses put the needle in.

When we got to SDMC, mum told Nurse Siti to put some Emla cream on first. It takes about one hour to take effect so Nurse had to wait before inserting the needle and taking my blood.



Mum made some calls for work while I made a monkey puppet from my Charlie & Lola magazine. I also looked through my new cupcake book to choose which cupcakes to make next time. The nurses asked when I was going to make cupcakes for them. After that, I played with my Nintendo. Mum gave me my lunch at noon, she'd packed fried red snapper, steamed broccoli and rice. But I didn't really feel like eating so I didn't finish it.

Dr Lin came in at around 1 o'clock. We got to see him at around 2 o'clock. He asked if I was alright after having had the anti-chickenpox injection and if I had started growing any spots. He told mum that the incubation period was three weeks anyway so if I was going to get chickenpox, it would be after three weeks.

He said he would be going on holiday for the whole month of May. I will see him for my next blood test on June 6 instead of in two weeks time. He said my blood counts were fine and to continue with my 6-MP and MTX chemo tablets as usual. He told mum to bring me straight to SDMC if I have a fever in the meantime. Then he gave me my Vincristine. He asked about the netbook mum was using and asked if it was very different from my iPad. Then he went to see other patients.

There were three other patients in chemo daycare today. Two of them were from the Middle East. One was a girl older than me and one was a little boy named Mohamad. His mum wore a long black outfit that covered her face and everything except her eyes. I asked mum what she was wearing.

Then Nurse Siti took my needle out and gave mum the bill. We finished at around 3pm. After we left, mum realised she forgot to take my blood test results.

I got hungry after that so I got mum to buy some KFC for tea on the way back. At home I asked Bibik to fry some keropok lekor. I had spaghetti and cheese for dinner at 7.30pm. At night, I did some work but after a while my head hurt.

Then I drew a picture of a ballerina.

I had my 3/4 tablet of 6-MP and five Methotrexate (MTX) tablets at 10pm. I was hungry again at 11pm so mum made some peanut butter and chocolate rice on toast.

Mum asked me when I was going to take off the big bandage on my back from the spine injection. She said it's been a week already. So I slowly took it off all by myself. It was the first time I'd ever taken it off all by myself. Mum said I was a really clever girl.


QOTD: "I want to go to Paris and see the Eiffel Tower. Paris is the city of love. It does look romantic."


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