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Tuesday, March 23, 2010

Thursday 18 March 2010 - Treatment Day 78


I can finally go home today. My fever is all better now. But Dr Lin said I'll have to see him again if the fever comes back. I may get a fever again later because my White Blood Cells (WBC) will be very low 7 days after the Cyclo chemo. They only start rebuilding about 14 days after. This is because the Cyclo is very very strong and kills off all the cells. WBC help to fight infections so I will be very prone to infections when my WBC is low.

Dr Lin gave me Fluconazole capsules to take home. They prevent and treat fungal infections in my body. He also gave me Potassium Chloride tablets to increase my potassium levels which are a bit low at the moment, due to the Ampho-B antifungal.

I didn't really want to go home, despite being really fed up of staying in hospital all the time, because I knew the nurses would need to take the needle out of the chemoport. I hate that because it really stings when they rub the alcohol swab over it after they take it out. So I cried when Dr Lin said I could go home. Everyone was puzzled at first but then mum told them why. Dr Lin tried to iron out the frown lines on my forehead.

Mum thought we could go home in the morning after Dr Lin had seen us but my haemoglobin levels were low so I needed a blood transfusion. It took several hours for the blood lab to get the right match for me, so it only started at 4.30pm.
It normally takes 4 hours for all the blood to get into my body but it took a lot longer today because the machine I got today was not working properly and kept jamming up every two minutes. One of the nurses said this was because it hadn't been sent for servicing. The transfusion machines need to be serviced every once in a while. Kind of like a car.
Everytime it jammed up it made loud beeping noises so I had to call the nurses every time for them to reset the machine and make sure the blood was going into my body. So there was a steady stream of nurses marching in and out every two minutes throughout the whole day. This lasted til after 9pm. Mum got a headache.

I was rather hungry today. I had fish, rice and watermelon for lunch, a sausage for tea, fish and rice again for dinner, and lots of hot chocolate in between.

We only got discharged after 10pm, so we got home after 11pm. I wasn't very happy when they took my needle out. I wanted to keep the needle but mum said there would be germs if it's left in for too long.


Blood count:
Haemoglobin 10.00
Platelets 164
Neutrophils 48
WBC 2.0 (4.0-11.0)
Potassium 3.1 (3.5-5.1)



Today's bill: RM6,196.16



QOTD: "I'm pretending I'm camping. Campfire check, sausages check, marshmallows check, the stick to hold sausages and marshmallows check, cold water check. Now I need mustard and chilli sauce."

Thursday, March 18, 2010

Wednesday 17 March 2010 - Treatment Day 77


My fever was completely gone today. So Dr Lin said I can go home tomorrow. Mum was pleased. But then she suddenly realised she needed to get the car washed before that. So she tried to find a 24-hour carwash, because she can only leave when dad comes in the evening after work.

Later, mum went to a parents support group in hospital while grandma came to babysit me. Some mums and dads of new patients and surviving cancer patients came to share their experiences. They discussed a lot of topics, including supplements, diet and whether it was safe to go to public places.
Nurse Lee, who works with Dr Lin, was there to answer questions about supplements and stuff. She said that some supplements and most traditional Chinese herbs can be toxic when they interact with the chemo drugs. These include ginseng, gingko, high doses of Vitamin E, fish oil, turmeric capsules and garlic capsules.
Later she told mum that Dr Lin didn't believe in supplements, even those that weren't dangerous to chemo patients. She said that only multivitamins are recommended, because they contain smaller doses of vitamins.

One of the parents said that perhaps it wasn't advisable to go out at all, in order to prevent infections, even to places that were not crowded. But Dr Lin had told mum that all his patients got infections whether they stayed at home or went out. The nurse later told mum that patients could get depressed if they just stayed at home throughout the entire treatment. I really hate staying at home all the time, I get so bored. I like to go out to the malls and restaurants and check out new stuff.

After that mum went out to get the car washed. She also had the aircon cleaned of fungus. She got me some new clothes and pyjamas while she waited for the car to be cleaned. She also got me a new monopoly game, it was a special Hannah Montana version.
I walked around a bit today to exercise my legs. Mum unplugged my drip which has all the antibiotics and antifungal and hydration. I looked out the window and saw Sunway Lagoon and Sunway Pyramid.

Tuesday 16 March 2010 - Treatment Day 76


My fever is getting better, I had a low-grade fever of 37.6 today. But Dr Lin said I can't go home so soon yet because I will probably get a high fever again.

Mum didn't have to work today so she decided to go out and go shopping. She says she still needs to buy a lot of new clothes for me, because my old clothes are really too tight. I used to be the sort of girl who could still fit into her old pyjamas that were meant for 12-18-month-old babies. Despite being 5 years old. But because of the steroids I took last month, I need to wear clothes for at least 8 or 9 year olds, even though I am only 6.

Grandma came to babysit while mum went shopping at Gardens. Grandma made me some yummy porridge so I had that for lunch. I hate hospital food. Even the plain rice tastes yucky and I don't like to eat it.
Mum bought me some new tops, bottoms, dresses and underpants. But she says I still need a lot more. She also bought me some new books - Roald Dahl's James and the Giant Peach and two sparkly Lil Miss books. She also got me a new pasta cookbook and a Fashion Modelling CD-rom game.

Monday, March 15, 2010

Monday 15 March 2010 - Treatment Day 75


Dr Lin said he would start me on Ampho B so that I could go home quickly. Mum asked if I could go home tomorrow and he laughed and said that's not what he said. He told mum that he suspects that my chemoport is infected. So far the blood culture has not grown any bacteria or fungi.


I had a fever again at 6am, this time it was 37.9. Mum gave me paracetamol to make my temp go down but it came up again to 37.8 at around noon. I woke up really late today, around 11am, maybe because I felt really tired from the day before. I didn't have much of an appetite, and didn't eat breakfast or lunch. I just had two cups of milo and lots of water.


I played computer games like Barbie and Polly Pocket during the day while mum worked on her laptop. Later, Dr Lin gave us some really good news. He said my results had come back from Singapore and it showed that I had Standard Risk ALL. This is the lowest risk category for ALL. He said he was aiming for all his Standard Risk patients to be completely cured of leukaemia. Because sometimes cancer patients can become ill again even after they get better.
I started reading Harry Potter and the Philosopher's Stone today. Uncle Kumar (mum's friend) had given me the book.

Sunday March 14 2010 - Treatment Day 74


I had a fever of 39.5 just after midnight so mum and dad took me to SDMC at 1am. I took some paracetamol before that so my temperature went down to 37.9. The doctor at A&E called up Dr Lin who said I needed to be admitted. I wasn't very happy at all. I wanted to go home straightaway.


The doctor at A&E took some blood from me for a blood culture which will tell whether I have bacteria or fungi in my blood, or not. If there is bacteria or fungi, it'll grow in about 2 to 3 days. Doctors and nurses always tell me to lie down and close my eyes when I have blood taken out, but I don't want to. I want to sit up, look at the needle, and help to hold the connecter. They're always surprised.


We got settled into the hospital room at 2am. I wanted to watch the Disney channel but mum said I had to go to sleep. Dad went home. Luckily mum had brought her suitcase with her already, which had all my stuff, and hers.


Since they don't know what's wrong with me, they started me on Amikacin and Meronem antibiotics first. My temperature went up again, this time to 38.6, at 5pm.


We were supposed to have a small party for grandad today because it is his birthday tomorrow. But I couldn't go because I had to stay in hospital. So grandma and grandad brought the food and the cake to hospital after the party. There was a lot of food -- nasi briyani, mi bidali and blackforest cake. They are all grandad's favourites.


Aunty Nora brought me some Mr Men, Little Miss and Powerpuff Girls books. I really liked them.

Saturday, March 13, 2010

Saturday 13 March 2010 - Treatment Day 73


I mooched around at home today because mum said I shouldn't go anywhere as I'd just finished chemo and I was susceptible to germs. So I stayed at home with dad the whole day while she went to the office to do some work. She needed to get into the office system and the Maxis broadband is just too slow to do that. Before she left, she made me take some propolis, manuka honey and vitamin c to boost my immunity. I wasn't terribly thrilled.

It is the 1st day of my 2-week chemo break and I thought I'd be able to go out and do stuff and check out some malls or something. But mum said everywhere would be too crowded as it is the 1st day of the school holidays and it is also a Saturday. I wanted to watch Disney on Ice but mum said the place would be a cesspool of germs.

Later I felt a bit tired so I had a nap in the afternoon. Dad took my temperature and he said I had a low-grade temperature of 37.6. So he gave me some paracetamol.

Mum had to do a story about a man and a Chinese association today. After work, she bought me some new tops with buttons down the front so the nurses can put needles into my chemoport easily. She also got me a pretty flowery headscarf. She says I need a whole new wardrobe because I have grown bigger by 2 sizes, and I need a lot of tops with buttons down the front, but she hasn't had the time to shop properly.

Friday 12 March 2010 - Treatment Day 72


I had my 2nd round of Cyclo today. We had to go to hospital really early because it takes 8 hours to finish. Mum had to work so dad took the day off. Mum sent dad and I to hospital and then she went back home to work. She had to do a story about a king, his 2 queens and 2 princes.

Because I was stuck in hospital the whole day, mum packed me a lot of stuff to do. She packed me another doll-making kit, so dad and I did that. She also packed me my Strawberry Shortcake doll & swing, lots of books, and my DS Lite.

Dr Lin said I was doing well. Dad told him my temperature was 37.4 this morning but he felt my forehead and said I was fine. The nurses had taken my temperature earlier too, and it was normal. He strongly suggested that I shave all my hair off. He always asks mum about it, and mum always mumbles something in reply.

Mum was very late in picking us up, so I got very bored and upset while waiting. She said there were massive traffic jams all over the Klang Valley, plus it was raining. It took her over an hour to get to hospital while it usually takes 30 minutes.

I wasn't very hungry so I didn't eat much today. Mum bought roti canai for breakfast but I wasn't hungry. I just had plain rice for lunch. I munched on some seaweed in the car on the way back. Then I had a handful of fries and a strawberry smoothie for dinner. Mum says I have lost my ravenous appetite after I stopped taking Dexa.


Blood count:
Haemoglobin 12.8
Platelets 384
Neutrophils 62
Today's bill: RM1,509.35

QOTD: "If I don't sleep near somebody, I'll get bad dreams. Like me changing into a boy. That's a very bad dream."

Thursday, March 11, 2010

Thursday 12 March 2010 - Treatment Day 71


I had my last dose of Ara-C for the week. There were only 2 kids in chemo today, including me. It was really quiet today. It was really noisy yesterday when chemo daycare was full. Mum told Dr Lin I'd taken 6-MP for 29 days already. I'm supposed to take it for 28 days. So he said I can stop taking it now. But he said I was doing really well.

Aunty Vanessa, whose daughter Sarah also has ALL, congratulated us for coming to the end of the 1st phase of our chemo. This is because I will be having my 2nd round of Cyclo tomorrow. It marks the end of the 1st phase. The next phase will start in 2 weeks time, after a break with no drugs. Cyclo is the 8-hour chemo, which I had for the first time about a month ago. I didn't react too well, and got an infection after that, and had to stay in hospital for 10 days.

Grandma had to go and see her doctor again today, so it was just me and mum. I wanted apple juice and snacks after we finished but after we bought those, mum suddenly realised she had run out of cash. This was because she had given money to grandma last night to pay some bills. She didn't have any money in the car either because dad had used it last night. So mum didn't have money to pay for the parking. So we had to cross the bridge to get to the ATM machine at the new wing. Unfortunately the machine was not working. So we had to cross a huge highway and a large drain to get to the nearest bank. I wasn't very happy and mum looked quite furious. I couldn't cross the drain but luckily a very nice old man who was walking past offered to carry me across.

After that ordeal, I felt hungry so I had a hotdog at the hospital before we left. Then I felt hungry again and I remembered seeing a Japanese restaurant next to the bank we went to, so I suddenly had a craving for Japanese. Seeing as it was past lunchtime, we had our late lunch at a Japanese place on our way back. Mum said it was ok because it was totally empty and there were no other people. Good thing too, because my neutrophils aren't very high at the moment. After that, I had waffles for dessert.

When we got home, I got upset because I suddenly remembered that mum said the nurses would need to take my needle out of my chemoport on Friday because I will be on a chemo break for two weeks. If they leave the needle in, mum says there'll be germs. I remembered that tomorrow is Friday. Mum tried to distract me. I made a mermaid doll with a doll-making kit after that. But I couldn't finish it because we couldn't find the double-sided sticky tape.



QOTD: "I don't want to do that again. That wasn't very nice. Crossing the big road, and crossing the drain. It's really dusty. There's lots of cars going very fast. You could get killed."

Wednesday, March 10, 2010

Wednesday 10 March 2010 - Treatment Day 70

I had my 3rd Ara-C chemo for the week. Dr Lin came in a bit late today. But I got a really nice surprise, aunty Mel (mum's friend) came to visit me in chemo daycare. She brought me a lot of presents, she got me a pink cash register which had monopoly money and credit cards and beeping buttons and everything. She also got me some chocolate biscuits. Her daughter Heidi had also chosen a really pretty pink headband for me and a fluffy sequin-y pink pen which looked like a wand. I was really happy. I liked the headband and wore it immediately even though I don't have much hair at the moment.

Grandma couldn't come with me again today, because she had to go to see her doctor in the morning, and she had a party in the afternoon. But she came to visit me in the evening.

QOTD: "Grandad's never taken me to chemo before. He can come and see me in chemo one day. But he can't bring his bang-bang, else it might go off and hurt somebody."

Tuesday 9 March 2010 - Treatment Day 69


I had my 2nd Ara-C chemo for the week today. Dr Lin came very early again today so I was finished by around noon. Grandma didn't come with us today, she had a lot of errands to run.

Mum taught me about times tables today. And I read some more of The Enchanted Wood while waiting for Dr Lin. I had a bit of a headache while waiting for him, but when the nurse brought me some paracetamol, I said it had gone. I said my legs hurt a bit too, so he made me walk a bit, but then I said they no longer hurt. Mr Bean was showing on telly when he came, it was the one where he decorated a Queen's guard with flowers and his teddy bear. Dr Lin laughed and said Mr Bean was really silly.

I keep seeing the trailer for the new Alice in Wonderland movie on television. It is showing in the cinemas. I asked mum if she could buy me the dvd. I already have the Disney animated version on dvd. It looks a bit scary. If I watch the new Alice in Wonderland dvd at home, I can stop it halfway. Mum says it is indeed rather scary for young kids but I really want to see it.
It was such a hot day today. I ate watermelon fruit in the car on the way back.


Today's bill:
RM304.04
QOTD: "Alice in Wonderland has the same actor that's in Charlie and the Chocolate Factory. I saw it. His name is Johnny Depp."

Sunday, March 7, 2010

Monday 8 March 2010 - Treatment Day 68


I had to go back to hospital again for my last block of Ara-C chemo. I wasn't very pleased and made a huge fuss in the car. Mum said she thought the car would explode. I got sick in the car after that.

It turns out I also needed to have the chemo injection in the spine today too. That meant I couldn't eat before the injection. But mum forgot. Luckily I hadn't had breakfast, but grandma had given me a biscuit and some water after I got sick in the car. So even though Dr Lin came unusually early today, before 11am, he said he would need to do my spine injection later, to let the biscuit digest. So I had to wait until around 2pm.

I watched the Oscars while we waited. I was happy that Up won for the best cartoon movie and song. I enjoyed the dancing that they did to the soundtrack but mum didn't recognise the song. I was surprised Avatar didn't win.

After the Oscars ended, I read a bit more from The Enchanted Wood. I also played some computer games.

My blood count was good today, except for my haemoglobin, so I needed to have a blood transfusion too. That took up almost the whole day. I was extremely unhappy. I was already unhappy earlier because they needed to put a new needle into my chemoport. But mum says I can keep the needle until Friday because I need to go for chemo everyday until then.

Grandma's friend, aunty Sharifah and her daughter aunty Intan came to visit me, and brought me a teddy bear, chocolates and chocolate chip cookies.

I didn't really like it when they gave me ketamine to make me sleep for the injection. I tried to fight it. After that I woke up really quickly too. And I got sick a few times again after that. Maybe it was the biscuit that I had eaten just before the injection. Or maybe it was because I hadn't eaten breakfast. Or maybe it was because they nearly forgot to give me the anti-sick medicine.

I wanted to go home straightaway but the blood top-up wasn't finished yet. Mum told me to go to sleep. We went back rather late, at around 6pm. I slept in the car on the way back. I was so tired I didn't wake up when we got home, and I went straight to bed. My legs were tired too.


Blood count:
Haemoglobin 10.4 (13.0-18.0)
Platelets 255 (150-400)
Neutrophils 45 (40-74)
Today's bill: RM2,718.94

Sunday 7 March 2010 - Treatment Day 67


Mum bought me a new hat today from one of my favourite shops. I don't have that much hair left, and none of my hats fit me anymore. And dad lost my favourite hat, I think. Mum says it's gone into the black hole. It was last spotted in his car.


Saturday, March 6, 2010

Saturday 6 March 2010 - Treatment Day 66


Grandma babysat me today while mum worked. She said it was a bit busy today, with lots of news, something about frogs being kicked before they could jump, and pretenders saying they were sorry, and banned parties splitting from parties. Whatever that means.

I started reading The Enchanted Wood today, a book by Enid Blyton. It is the first of the Faraway Tree series, which mum says she really enjoyed as a little girl. Mum also bought me a big recipe book from the Big Cook Little Cook series, which she managed to find in a bookshop. It came with an apron, shopping lists and cookie cutter. I had really enjoyed reading the little recipe books that came with the dvds. In fact, I'd pored over them so much, that mum says the books have all but disintegrated. But they were a bit fragile anyway.

I have a new favourite song now. It is called Dancing Queen by Abba.
QOTD: "If my tooth falls out, will the tooth fairy give me a coin, or a present? If she does, then that means the tooth fairy really exists, right?"

Friday, March 5, 2010

Friday 5 March 2010 - Treatment Day 65


I told mum I wanted to go to school today, but just for an hour. I miss school, and my friends and Tok Mummy. I even packed some of my newest books into my Charlie & Lola schoolbag (which mum's friend aunty Eve had bought for me last year before I got ill), because I wanted to show them to Tok Mummy.

So I woke mum up bright and early so that she could send me to school. I even showered and got ready all by myself. But when we were almost there, I changed my mind. I didn't feel like going to school anymore. Mum had already called Tok Mummy twice so she said Tok Mummy was already expecting us. She called Tok Mummy again, who spoke to me on the phone, but I told her I didn't feel like going anymore. Tok Mummy said it was ok, and that maybe I could come another time.

While I was showering, I told mum I couldn't remember how the chemoport got inside my chest. I asked mum how it got there. She said Dr Goon had put it there. I asked how. She said I had had an operation. I said I could remember that it was in a room where everyone wore blue outfits and blue shower caps and one of them had put a canula into my ankle but I couldn't remember anything else after that. I said I had gone to sleep and I couldn't feel anything. She said that was good. Then I asked when they would take the chemoport, and I asked how it would be done. She said it would be taken out when I feel all better. I asked how it would be taken out, and she said I would have another operation.

I told her I didn't like being asleep when they do the bone marrow biopsies though. They give me a drug called ketamine. When I had the chemoport put in, they had given me a general anaesthetic.

I told mum that when I wake up from the ketamine, mum and dad look green and purple. The pictures on the wall also look very small and far away. I can also see goblins coming out of the ceiling.
Stayed at grandma's today, as mum went out for the evening. But grandma got the timings for my chemo tablets mixed up and had to call mum. Mum tried to go through it with grandma, but I'm not sure if grandma ended up getting even more confused.

Thursday 4 March 2010 - Treatment Day 64


I had to go to the dentist today, because my teeth hurt. But the dentist said my teeth were in very good condition, and that one tooth was starting to become a little loose. He gave me some multivitamins and a mouthwash. Mum wasn't terribly excited. They're yet more things to add to a litany of things she has to remember to give me.

After that mum had to work. She did something about tea parties and the Internet and Putrajaya. I watched dvds and played computer games. Then mum and dad went to dinner at Kirishima and Delicious while grandma and grandad babysat. I called mum and dad every few minutes because I missed them. I asked them about where they went to, and what they were eating, and what type of Japanese food they had ordered. I really like Japanese food.


QOTD: "Where is New York? Is it near Hollywood? Because they have some rock stars in New York too, like in Hollywood. I saw it on TV. You know, when you get near to Hollywood, there is a sign that says Hollywood."

Wednesday, March 3, 2010

Wednesday 3 March 2010 - Treatment Day 63


Mum's modem didn't work again so we had to go to the Maxis service centre. Again. They keep telling her it's working fine but this time, she insisted they change the modem. So they said they could upgrade the software instead. But then they discovered that the software couldn't be upgraded, and then they told mum the modem had been attacked by a virus. She told them that she knew all along there was something wrong with the modem but that they wouldn't listen.

After that I was hungry, so mum bought me some keropok lekor from the Satay Bar. She also got two durian pancakes from a stall called Durian Durian which sells cakes and other sweet things made with durian. I said I wanted a pancake because it smelled nice. But I didn't finish it because it had too much durian in it.
After that I wanted to go to grandma's. She said she once knew how to fold all sorts of things out of paper when she was younger. She made me a few things with my origami paper, baskets and other things. But mum forgot to take photos again. The above picture was taken off the Internet.
After work, mum went out for a bit to send aunty Lyza's chocolate fountain for fixing. Aunty Veena is having a chocolate fountain party this weekend for her nieces. The fountain didn't work during my party and I couldn't use it in the end. But the repairman managed to fix it.

Tuesday 2 March 2010 - Treatment Day 62


Mum didn't work today. I played for a bit then I got bored and asked if we could go out. Mum took me to a bookshop at a mall that wasn't very busy. I bought lots of new books including some Little Miss books.

I had fillet-o-fish for lunch today, and then I had nasi lemak and waffles for tea.

After that, we went to grandma's house and I played with my cousins Omar and Emma. Mum went to Bangsar and got me more books, including some by Asha Gill on recycling. She also got me the book version of Fantastic Mr Fox by Roald Dahl. I had told her I wanted the book after her friends aunty Elisia and aunty Elena had bought the dvd for me.
Mum also bought me some origami sets. Origami is the traditional Japanese art of folding paper into all sorts of shapes such as birds and fish and stuff. Aunty Eve had folded a paper box and lots of stars which she had put into the envelope with my Big Cook Little Cook dvds and I really liked playing with them. I told mum I wanted to learn how to fold stars too. I wanted to give one to grandma, to grandad, to dad, and to Tok Mummy. But the origami sets we got were a little too difficult.

Monday, March 1, 2010

Monday 1 March 2010 - Treatment Day 61


I was very cheerful today because I didn't have to go for my chemo. I woke up late, and then watched some of the Big Cook Little Cook DVDs again.

Mum said her Maxis modem wasn't working again so we had to leave the house and go to the service centre. But for some reason, the modem worked when they tested it. It always does that. Mum says it is a conspiracy.

After that I had some keropok ikan at the Serai Satay Bar. At first I wanted my favourite keropok lekor but then I changed my mind. Mum had a teh tarik. We also bought lots of Dettol wipes, mum said we'd run out of them. When we got home, mum's modem didn't work again. So I had to go to grandma's because mum needed to go to her office to work on a story about politicians and oil.
Mum had to teach grandma how to give me my chemo tablets, she's never done it before. I have to take three quarters of the 6-MP tablet once a day everyday. And preferably 1 hour before meals or 2 hours after. And never with milk.

Sunday 28 February 2010 - Treatment Day 60


Today was mum and dad's 8th anniversary. It was also my cousin Afifa's birthday. She had a special feast and prayers at a surau or prayer hall near her place, which was also to celebrate the arrival of her new baby brother Naim. I couldn't go though, because I had just finished a block of chemo yesterday and mum said I was very susceptible to germs, and there would be lots of people there. So everyone else went except for me and mum. I watched the Big Cook Little Cook DVDs again while mum cleaned the house. Uncle Hizwani (mum's brother) said they also had special prayers for me.

Later I went to grandma's house while mum and dad went out for a special dinner and massage. They hadn't had time to plan a proper celebration for themselves this year as they've been very busy. This time last year, we all went to Australia. But we probably won't be able to go on any holidays until the middle of next year or even after that. But dad says we may go to a quiet isolated beach or something when I have another chemo break in a few weeks time.
Mum still has RM5,734 worth of airline credits if anyone is interested in buying any.

Saturday 27 February 2010 - Treatment Day 59


I had to go for my Ara-C chemo again today. This time mum and dad took me, dad said his cough had improved today.

Dr Lin said I was getting better and better. He saw that I was playing computer games while waiting for him. He said I won't have to come in for chemo next week, because he will be on leave. Mum asked if it was safe, and he said yes, otherwise he wouldn't say so. But he said I would need to take my 6-MP chemo tablets every day as usual.

I had roti canai for brunch while waiting for him, he came in very late at 1.30pm because he had a lot of patients at his clinic. The nice aunty who bought me roti canai the last time had bought some for me again. But it had egg and I didn't feel like eating egg today so I just ate the plain parts. Dad bought me another plain roti after that because I was still hungry. The aunty's son goes to chemo daycare but she says Dr Lin hasn't found out what is wrong with him yet. His platelets are very low, but she says that his bone marrow biopsy shows that he does not have leukaemia.
I wasn't very happy after chemo, because the nurses had to take the needle out of my chemoport. I can only keep the needle for about 4 days and my next chemo is only due on March 8. I screamed so loudly that they could probably hear me from outside.

After that I had some fish and chips for lunch. I also had some nuggets. The screen on mum's phone wasn't working very well anymore, so dad had to send it to the shop for repairs. Mum's Maxis modem wasn't working today either so that needed to be fixed too. The shop said it was ok but when she got home it didn't work again. So she decided to go to the office to work.

I had a big surprise when I got to grandma's house. Aunty Eve (mum's friend), who lives in London, had sent me a package of five DVDs of the Big Cook Little Cook cooking programme for kids. Mum had told her I'd wanted them. I was so excited that I watched all of them straightaway and read all the little cookbooks that came with them over and over.
Today's bill: RM368.54